Chandler Crews

Aug 8, 2021

Joint Pediatric Advisory Committee and Endocrinologic and Metabolic Drugs Advisory Committee Meeting (May 2018)

Pretty soon, I’m getting the opportunity to speak (again) with members of the U.S. Food and Drug Administration to express the urge for why there need to be pharmaceutical treatment options on the market for those with achondroplasia. The last time I spoke with the FDA was in 2018. …

Achondroplasia

2 min read

Aug 8, 2021

Never Change, but Never Stay the Same

Originally posted on April 8, 2021. It’s been 227 days since I celebrated my 10-year leg-iversary and since I quoted Taylor Swift then, I may as well keep the theme going and quote her today — also, I’m stoked as f–k for the drop of Fearless (Taylor’s Version) tonight 💫 …

Limb Lengthening

1 min read

Oct 27, 2020

‘What’s it like being a little person?’ I was touched without my consent and forced to apologize. I was so naive.’: Woman with Achondroplasia urges ‘I’m not a little person, I’m not a dwarf, I’m just Chandler’

Originally posted on Love What Matters. “I knew the word ‘achondroplasia’ by the time I was able to talk. At 2 years-old I was able to say, ‘I have achondroplasia,’ even though I probably didn’t fully understand what it meant. By the time I was about 4, I knew having…

Achondroplasia

9 min read