Pretty soon, I’m getting the opportunity to speak (again) with members of the U.S. Food and Drug Administration to express the urge for why there need to be pharmaceutical treatment options on the market for those with achondroplasia. The last time I spoke with the FDA was in 2018. …

Originally posted on April 8, 2021.

It’s been 227 days since I celebrated my 10-year leg-iversary and since I quoted Taylor Swift then, I may as well keep the theme going and quote her today — also, I’m stoked as f–k for the drop of Fearless (Taylor’s Version) tonight 💫

Originally posted on Love What Matters.

“I knew the word ‘achondroplasia’ by the time I was able to talk. At 2 years-old I was able to say, ‘I have achondroplasia,’ even though I probably didn’t fully understand what it meant. By the time I was about 4, I knew having…

Chandler Crews

Patient Advocate ・ Communications & Social Media Savvy

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