Pretty soon, I’m getting the opportunity to speak (again) with members of the U.S. Food and Drug Administration to express the urge for why there need to be pharmaceutical treatment options on the market for those with achondroplasia. The last time I spoke with the FDA was in 2018. Since I’m getting the chance to do it again soon, I thought I would share my words from then.

After my upcoming meeting with them soon, I will come back here and share my words.

Achondroplasia has impacted my life both physically and emotionally for 24 years. I have a 50%…

Originally posted on April 8, 2021.

It’s been 227 days since I celebrated my 10-year leg-iversary and since I quoted Taylor Swift then, I may as well keep the theme going and quote her today — also, I’m stoked as f–k for the drop of Fearless (Taylor’s Version) tonight 💫

She once said, “I’ll never change, but I’ll never stay the same either.” I resonate with this a lot because, during those 227 days, I did change — both physically and mentally. I had no idea going into it the different person I would become by April 8 — the…

Originally posted on Love What Matters.

“I knew the word ‘achondroplasia’ by the time I was able to talk. At 2 years-old I was able to say, ‘I have achondroplasia,’ even though I probably didn’t fully understand what it meant. By the time I was about 4, I knew having achondroplasia was the reason why I was smaller than all the girls in my dance class. As I got older, I began to understand it more and more.

It’s like they say in the shows on Lifetime and TLC, we (people with dwarfism) can pretty much do what everyone else…

Chandler Crews

Patient Advocate ・ Communications & Social Media Savvy

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